Headlines:

flickr facebook twitter digg stumbleupon feed

War on Tuberculosis in Uganda

Tuberculosis: Working to Empower The Nations’ Diagnostic Efforts (TWENDE) is a research and advocacy project which is convinced of the theory of change that is based on the assumption that empirical data can be collected; and which data documents the barriers that hinder up-take of successful tuberculosis (TB) diagnostics and also the opportunities that can accelerate up-take of successful TB diagnostics.

The theory’s logic follows that TWENDE can collect empirical data and that once collected, documented and analysed, the data can be a sound basis on which to engage policy. Engaging policy, within the context of TWENDE, is with the view of influencing policy makers and implementers, in a conciliatory manner, in order to encourage the translation of research innovations into policy and into practice; and thus improving access to TB diagnostics and medication.

Read more: War on Tuberculosis in Uganda

Citizen Story of a TB Survivor

 

Twenty five years ago, I woke up early in the morning, around 05:00 a.m. and I went to the spring well to fetch water. It is good to fetch drinking water very early in the morning. As I tried to draw water from the well, I slid and fell into the well. I stayed in the water for a long while and I lost consciousness before I was rescued. About three years after I fell in the well, I started to experience chest pains and I began to cough. I received treatment for chest pains and for cough, but the pains and cough persisted.

Shortly after, my husband passed away; and moreover he passed away during the hunger season. I had no help. I decided to return home to my parents. I came home together with my young children – three girls; my only son died as a baby. My parents allocated to me a plot of land on which I have built my home. I have built two grass thatched huts at my homestead – one is where we sleep and the other is a kitchen and store.

Read more: Citizen Story of a TB Survivor

High Level Policy Workshops on TB in Uganda

On Monday, 27th November 2017, at Bomah Hotel in Gulu Municipality, from 8:30 a.m. to 5:00 p.m. CPAR Uganda Ltd will hold high level policy workshops on TB in Uganda.

Participation is by Invitation only. Invited participants total to 70, including:  senior politicians, senior administrators and senior health experts, who are selected from district local governments that are located in the Northern Half of Uganda, key institutions of the Central Government, and representatives of subject relevant non-governmental institutions.

The workshops will be conducted in a style that is characteristic of the conduct of District Integrity Promotion Forums. However, the workshops will also be closed meetings and will be held under the Chatham House Rule.

Read more: High Level Policy Workshops on TB in Uganda

Qualitative Investigation of TB in Uganda in Progress

“Find the missing patients with tuberculosis ... One of the major reasons contributing to missing of cases is poor health seeking behaviour of those reporting chronic cough. About 39% of symptomatic presumptive TB patients and 36.7% of symptomatic prevalent TB cases did not take any action for their symptoms.

The reasons for not seeking care included ignored illness (31.1%), self-treated (31%), hindered by cost (16%), did not recognise illness (12%), long distance (5.4%), long waiting time (1.3%) and others (2.9%).

Understanding and addressing patients’ barriers to service access is crucial to maximize the demand for service utilisation. Furthermore use of poor TB diagnostic services contributes to missed TB cases. There is need to use up to date TB screening services; including use of new developments in diagnostics.”

Read more: Qualitative Investigation of TB in Uganda in Progress

TWENDE Qualitative Data Collection in Progress in Uganda

 

Qualitative data collection by CPAR Uganda Ltd (CPAR) has intensified for the University of St. Andrews led empirical research and advocacy study project code named: “Tuberculosis: Working to Empower Nations’ Diagnostic Efforts (TWENDE)” that is funded by the European & Developing Countries Clinical Trials Partnership (EDCTP).

Read more: TWENDE Qualitative Data Collection in Progress in Uganda

TWENDE Qualitative Research Investigation – Progress in Uganda

As of 19th June 2017, CPAR Uganda Ltd (CPAR) has so far conducted qualitative research investigations in six districts of Uganda for the European & Developing Countries Clinical Trials Partnership (EDCTP) funded empirical research and advocacy study project code named: “Tuberculosis: Working to Empower Nations’ Diagnostic Efforts (TWENDE).”

In those six districts CPAR has conducted one-on-one interviews with a total of 30 persons, including: Resident District Commissioners, District Chairpersons, District Health Officers, Health Care Facility Administrators, Health Personnel, Tuberculosis (TB) patients or survivors and TB patients care givers.

Read more: TWENDE Qualitative Research Investigation – Progress in Uganda

TWENDE Qualitative Data Collection in Progress

 

Since May 2017 Qualitative Data Investigators (QDIs) for the European & Developing Countries Clinical Trials Partnership (EDCTP) funded Tuberculosis: Working to Empower Nations’ Diagnostic Efforts (TWENDE) research and advocacy study are actively collecting ‘new’ qualitative data – conducting interviews and focus group discussions – in Tanzania, Kenya and Uganda.

Read more: TWENDE Qualitative Data Collection in Progress

TWENDE Receives Approval in Tanzania

 

The Government of the United Republic of Tanzania (GoT) has given the research project: “Tuberculosis Working to Empower Nations’ Diagnostic Efforts (TWENDE)” a “Clearance Certificate for Conducting Medical Research in Tanzania”  

Dr. Mwelecele N. Malecela – Chairperson Medical Research Coordinating Committee of the GoT and Prof. Muhammad Bakari Kambi – Chief Medical Officer of the Ministry of Health, Community Development, Gender, Elderly and Children of the GoT, in a letter dated 11th October 2016, communicated to the TWENDE Principal Investigator for Tanzania the GoT’s decision granting TWENDE ethical clearance and therefore permission to conduct the TWENDE study in Tanzania.

Read more: TWENDE Receives Approval in Tanzania

TWENDE Receives Ethics Approval in Kenya

“The Study (Tuberculosis Working to Empower Nations’ Diagnostic Efforts (TWENDE)) is granted approval for implementation”, wrote the Kenya Medical Research Institute (KEMRI) Scientific and Ethics Review Unit (SERU) in a letter to the TWENDE Consortium dated 15th August 2016 and signed by Mr. Ambrose Rachier, SERU Chairman.

This means, therefore, that SERU has approved to be conducted in Kenya the East Africa wide TWENDE research study. The Principal Investigator for TWENDE  in Kenya is Dr. Evans Inyagala Amukoye. Ms. Norah Owaraga is the TWENDE Social Scientist and she will support the TWENDE Kenya Team as an advisor for the qualitative data collection, processing and analysis. Dr. Wilber Sabiiti is the TWENDE Team Leader. 

Read more: TWENDE Receives Ethics Approval in Kenya

TWENDE RECEIVES ETHICS APPROVAL IN UGANDA

The Makerere University Kampala (MUK) School of Biomedical Sciences Higher Degree Research and Ethics Committee (SBS-HDREC) has approved to be conducted in Uganda the East Africa wide research study titled: “Tuberculosis Working to Empower Nations’ Diagnostic Efforts (TWENDE)” 

In a letter signed by Dr. Erisa Mwaka, Chairperson, SBS-HDREC and that is dated 9th September 2016 the SBS-HDREC informed the TWENDE Consortium as follows: “In the matter concerning the review of a research proposal entitled: “Tuberculosis Working to Empower Nations’ Diagnostic Efforts” the Investigator has met all the requirements as stated by SBS-HDREC and therefore, the protocol is APPROVED.” 

Read more: TWENDE RECEIVES ETHICS APPROVAL IN UGANDA